United we fight Noma on every level possible

Elysium & Allies

Marianne Comparet, Cofounder &Director

International Society for Neglected Tropical Diseases (ISNTD)

‘The evidence is unequivocal, noma meets the criteria for defining neglected tropical diseases.
The distressing extent and speed with which noma impacts those affected means that every
effort must urgently be made at all levels to step up the prevention of this disease. This cannot
happen whilst noma remains unknown or ignored – noma’s official recognition on the WHO’s
NTDs list is a milestone and a catalyst driving awareness, advocacy efforts and the resources
needed to ensure vulnerable communities no longer endure the burden of noma.’

Ioana Cismas
Co-Director, Centre for Applied Human Rights and Professor at York Law School

Centre for Applied Human Rights (CAHR)

‘Noma’s addition to the WHO’s NTDs list is both long overdue and just the beginning. For
decades, medical experts, humanitarian charities, and human rights bodies have advocated
for noma’s formal recognition as a neglected disease. They have done so, not as an end in
itself – but as a means to channel political attention and institutional support toward addressing
this disease and redressing the human rights violations of noma survivors. As we celebrate
this important achievement, we must also commit to an inclusive way forward: noma road map
must be shaped by survivors’ needs and priorities, and by their leadership.’

Claire Jeantet
Filmmaker and noma consultant, Inediz

— Inediz

‘By sharing their stories with dignity, the people in our documentaries help us gather a visual
diary of physical and psychological consequences of noma, a disease that shouldn’t exist
anymore. Today, its addition to the WHO’s NTDs list, supported by so many countries and
championed by Elysium, is a wake-up call to the global community. We know how to prevent
and treat this devastating disease and the people affected by it can no longer be ignored.’

Ute Winkler-Stumpf
Founder and President

Hilfsaktion Noma e.V.

‘The horror of noma literally shocked me into action more than 30 years ago. As a middle-
aged teacher in Germany, I had never heard of the disease – and unfortunately, that is also
still the case for most people today when I talk to them about noma. I hope the addition to the
NTD list will help to change that and create more visibility globally for the “face of poverty” aswe continue to help noma survivors in our treatment centers in Guinea Bissau, Niger and
Nigeria as well as other countries that are burdened by the disease.’

Marianne Comparet, Cofounder &Director

International Society for Neglected Tropical Diseases (ISNTD)

‘The evidence is unequivocal, noma meets the criteria for defining neglected tropical diseases.
The distressing extent and speed with which noma impacts those affected means that every
effort must urgently be made at all levels to step up the prevention of this disease. This cannot
happen whilst noma remains unknown or ignored – noma’s official recognition on the WHO’s
NTDs list is a milestone and a catalyst driving awareness, advocacy efforts and the resources
needed to ensure vulnerable communities no longer endure the burden of noma.’

Ioana Cismas
Co-Director, Centre for Applied Human Rights and Professor at York Law School

Centre for Applied Human Rights (CAHR)

‘Noma’s addition to the WHO’s NTDs list is both long overdue and just the beginning. For
decades, medical experts, humanitarian charities, and human rights bodies have advocated
for noma’s formal recognition as a neglected disease. They have done so, not as an end in
itself – but as a means to channel political attention and institutional support toward addressing
this disease and redressing the human rights violations of noma survivors. As we celebrate
this important achievement, we must also commit to an inclusive way forward: noma road map
must be shaped by survivors’ needs and priorities, and by their leadership.’

Claire Jeantet
Filmmaker and noma consultant, Inediz

— Inediz

‘By sharing their stories with dignity, the people in our documentaries help us gather a visual
diary of physical and psychological consequences of noma, a disease that shouldn’t exist
anymore. Today, its addition to the WHO’s NTDs list, supported by so many countries and
championed by Elysium, is a wake-up call to the global community. We know how to prevent
and treat this devastating disease and the people affected by it can no longer be ignored.’

Ute Winkler-Stumpf
Founder and President

Hilfsaktion Noma e.V.

‘The horror of noma literally shocked me into action more than 30 years ago. As a middle-
aged teacher in Germany, I had never heard of the disease – and unfortunately, that is also
still the case for most people today when I talk to them about noma. I hope the addition to the
NTD list will help to change that and create more visibility globally for the “face of poverty” aswe continue to help noma survivors in our treatment centers in Guinea Bissau, Niger and
Nigeria as well as other countries that are burdened by the disease.’