News and Articles
An Interview with Fidel Strub. Noma Survivor and Advocate
Fidel Strub was born in May 1991 in Ouagadougou, Burkina Faso. In April 1994, he became sick with the life-threatening disease noma. Today at 32 years old, Fidel has undergone a total of 27 operations and is the co-founder of Elysium Noma Survivors Association founded in 2022. He is an advocate for survivors and strives to raise awareness of noma. Here is his story...
Critical year in tackling noma
Ireland has backed a global campaign to classify noma as a neglected tropical disease.
The disfiguring disease, noma, struck Ireland during the Famine and today it remains so lethal in the developing world that no other infectious disease kills so many people so quickly.
The Deadly Disease You Never Heard About — And How You Can Help
How is it that after decades of practicing infectious disease and studying tropical medicine briefly in Peru, India, and Thailand—I only now learn of the infection called noma?
Noma Event in Stockholm and Malmö
Försummade sjukdomar är ett 20-tal diagnoser som drabbar miljontals människor varje år, främst de fattigaste. Det görs ytterst lite för att bekämpa dem.
Noma: The hidden Childhood disease known as the ‘face of poverty’
This little known and preventable disease disfigures those it does not kill – and a new campaign hopes to raise awareness and eradicate it entirely.
‘I want everyone to know there is ability in disability’
Twenty years ago, Mulikat Okanlawon travelled to a specialist hospital in northwest Nigeria to be treated for a devastating disease.
Mulikat Okanlawon,
Noma Survivor
She first came to the hospital more than 20 years ago to receive treatment for noma, a neglected disease that if untreated leads to severe disfigurement and often death.
The neglected of the neglected: Tackling noma
Noma affects thousands each year yet research and resources for it are limited. In northwestern Nigeria, one hospital is dedicated to fighting it.
Noma Survivors Demand that WHO Lists Disease as NTD
A team of health professionals and Noma survivors called on the World Health Organization on Tuesday to list the deadly infection of the mouth and face as a neglected tropical disease (NTD) so that it can receive the attention it needs to be eradicated
ADVOCATING FOR A NEGLECTED DISEASE
Students at the Faculty of Dentistry are advocating for a preventable disease that is affecting young children in impoverished communities.
The Noma Project
Final Scientific Report
Final Scientific
An Interdisciplinary Exploration of Its Realities, Burden, and Framing (hereafter, the Noma Project) commenced in October 2019 and formally concluded its work in March 2022
Noma Awarness Event- A Disease That Shouldn’t Exist Anymore
Every year an estimated 140,000 new cases of the disease noma are reported and of the people effected approximately 90% die
Mobilisation contre le noma à Genève
Connaissez-vous le noma? Cette maladie peu connue fait pourtant des ravages dans certains pays d’Afrique et d’Asie
GETTING NOMA OUT OF NEGLECT
Noma is a gangrenous infection starting in the mouth caused by extreme poverty, malnutrition and poor hygiene The disease kills up to 90 percent of people it affects
